Today is the 5th of March, 2015. But Im going to back up. Waay up. Mastocytosis is a long journey. And it’s all encompassing. Some are diagnosed with the cutaneous version as infants and children. Some have an adult onset of the systemic version. And some are lucky to have both. Like me. From day 1 there was problems. I tried to be born early. When I was born, I had a decent case of jaundice. Endured frequent eye and ear infections. Was hospitalized at 2 for pneumonia and then again the following year. Hopefully everything would calm down in time for kindergarten…Wrong.
To be continued….
1983 Pic of me pale with spots, barely-there hair and dark allergy bags under my eyes. If only we knew and it’s so obvious looking back and knowing. Need to spread awareness for all forms of mastocytosis.