Masto Moments

Not sure if this is a random flare or from taking progesterone. Either way this…

People with cutaneous mastocytosis tend to have “over reactions” to minor injuries.  Below is mere…

Mastocytosis patients usually have  problems with recurrent painful mouth sores and blisters that seem to…

These are some of some of the medications I take for Systemic Mastocytosis. Unfortunately because…

Still don’t know what causes my flushing. Seems mostly at night.. These are mild ones…..

..do this, don’t do that or you’ll get a hiiiive.   I’ll have to charge…

Another aesthetically pleasing symptom of Ehlers Danlos Syndrome. Keloid scarring from faulty collagen.  I call…

The ‘ole tongue ridges after eating no-no food