The other day I was scrolling through FB and came across this article describing a newly discovered syndrome consisting of the combination of autonomic dysfunction, allergies and tissue abnormalities.
I immediately thought hmm.. can’t help but think that could easily translate into a little known, but widely undiagnosed triad of diseases called dysautonomia/POTS, MCAD/Mastocytosis, and Ehlers Danlos.
I emailed the author and told him so. He agreed the joint laxity syndrome is likely Ehlers Danlos, but asked what POTS and masto were.
I explained what they were and all the common things we’ve all been misdiagnosed with.
How we come to these conclusions when we do our own polls on support groups/pages.
Never heard back after that.