“ALPIM Syndrome”..Have they finally found us??

The other day I was scrolling through FB and came across this article describing a newly discovered syndrome consisting of the combination of autonomic dysfunction, allergies and tissue abnormalities. 

I immediately thought hmm.. can’t help but think that could easily translate into a little known, but widely undiagnosed triad of diseases called dysautonomia/POTS, MCAD/Mastocytosis, and Ehlers Danlos.

I emailed the author and told him so. He agreed the joint laxity syndrome is likely Ehlers Danlos, but asked what POTS and masto were. 

I explained what they were and all the common things we’ve all been misdiagnosed with. 

How we come  to these conclusions when we do our own polls on support groups/pages.

 Never heard back after that.

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