Hello all. As some may or may not have noticed, I’ve been MIA (masto in action more like it) lately. One of my biggest triggers is my monthly hormones. Since I got worse in October 2014, there’s been only one month that my menstrual cycle hasn’t sent me to emerg.
My hematologist and I discussed starting hormone replacement therapy in hopes of eliminating my cycle all together, therefore avoiding the cyclic fluctuations of essentially poisonous hormones in my blood.
Being deathly allergic to your own body’s reproductive cycle is like an episode of Twilight Zone. Miniseries more like it.
At first it caused a flare in estrogen which was what we were trying to abolish. I eventually ended up being admitted for a few days. Was supposed to be longer but I ended up sneaking out. That doesn’t come as a surprise to anyone reading this that has (tried) being admitted for masto.
I was adamant that we were going to stop the Lupron. It was taking me down. My hematologist however, encouraged me to continue and in fact UP the dose to that more consistant with prostate cancer trearment. Somehow I ended up saying ok and we continued the shots.
Im super happy to report that I havent had a cycle in 4 months!! I still have flares and attacks but it’s not as frequent. At first I could NOT stop sleeping. I mean I sleep a lot, but it was intense!! 16 hrs wasnt unusual. Which felt even stranger because I was coming from having horrible and short sleeps.
I still have bad fatigue, but it’s not like it was thankfully. So now I will start the task of catching up on everything thats been going on the last few months….